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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: 32 minutes ago | Replies (367)

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@katec

@arcticmark Thanks so much for your reply! I’m glad you have found some success with IVIG. I know that IVIG is generally only for those with an identifiable autoimmune disease, so since my son doesn’t have any indication of autoimmune I’ve been told IVIG is a longshot. But I want him to try it since it’s really the only treatment that has shown to reverse SFN in some cases. His doctor is prescribing a 3 month trial so now we are just waiting for insurance. I’m expecting an uphill battle with insurance, but our doctor is terrific and knows she will have to persuade them to let us try this treatment. I’m hoping that my son’s age (15 yrs old) will help with our case. Honestly, he’d be over the moon if he could get ANY kind of relief and live a more normal teenage life! Thanks again for responding!!

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Replies to "@arcticmark Thanks so much for your reply! I’m glad you have found some success with IVIG...."

I was happy to see that positive post about IVIG for you and your son. Fingers still crossed for insurance approval. 🤞

Most insurance policies cover about 15 diseases for IVIG or "if it is medically necessary." They often deny based on you not having one of the 15 named diseases. If you have a good doctor they should be able to cite studies like Dr. Oaklander's and things about your symptoms that make them think that IVIG is medically needed for you. Good luck!