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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Yes, and I know several people who have tried it. It is the only thing that can reverse symptoms so why not? It helped one woman I know go from disabled to full-time employed. For some people it does nothing and for me it has reduced my symptoms 2-40%. Some of my symptoms just stopped with IVIG others go up and down with the infusions. Another issue is that I'm allergic to the plasma so I have developed eczema on a constant timeframe. That's been my only side-effect, I don't know if there are others, mine stops as soon as my infusions stop no long lasting problems. There is a good study out of MGH which is now being replicated with a doublSFN.e-blind study which found that IVIG was helpful with people who had SFN. All of my nerves are being impacted so my experience shouldn't be confused with
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@arcticmark Thanks so much for your reply! I’m glad you have found some success with IVIG. I know that IVIG is generally only for those with an identifiable autoimmune disease, so since my son doesn’t have any indication of autoimmune I’ve been told IVIG is a longshot. But I want him to try it since it’s really the only treatment that has shown to reverse SFN in some cases. His doctor is prescribing a 3 month trial so now we are just waiting for insurance. I’m expecting an uphill battle with insurance, but our doctor is terrific and knows she will have to persuade them to let us try this treatment. I’m hoping that my son’s age (15 yrs old) will help with our case. Honestly, he’d be over the moon if he could get ANY kind of relief and live a more normal teenage life! Thanks again for responding!!