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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@arcticmark

Hi! I have a rapidly progressing autoimmune mediated peripheral neuropathy and have found IVIG totally eliminates about 20 to 40% of my symptoms. Unfortunately it hasn't stopped the progression of my neuropathy but it has slowed it down somewhat. A member of my PN support group has short fiber idiopathic neuropathy and went from being disabled to being able to work full time with IVIG. A small study at MGH found 74% of people with short fiber neuropathy had positive results from using IVIG. It works if there is an autoimmune or inflammatory component of your disease. I'm not familiar with SFN but if you can get IVIG approved it is worth a chance. I had results with my first infusions although they say with some conditions it takes a while before you know if it works.

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Replies to "Hi! I have a rapidly progressing autoimmune mediated peripheral neuropathy and have found IVIG totally eliminates..."

My biggest question for you is, did IVIG get you out of the wheel chair? Can you walk? If and when you are able can you please provide me a brief synopsis of your IVIG journey beyond the percentages. How did IVIG help you in the early stages? What about later stages? How are you feeling currently and what has been your biggest gain overall? I really appreciate all that you can share.
Thank you.
Rachel