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DiscussionHas anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Replies to "Hi @fomdelia, I wanted to join @johnbishop in welcoming you to Connect. You may have noticed..."
Thank you for your help but I don't feel that the other community, IV infusions, will address what I am seeking feedback on. The community for infusions discusses Hizentra as a for treatment for neuropathy. Hizentra was approved for that condition not long ago. I have read the posts so far on the infusion community site and there was no discussion about my condition, Common Variable Immunodeficiency, and their experience with treatment for this especially Hizentra. I am really seeking to hear from those individuals who have this immune condition, how they cope with it and what has been their treatment, if not Hizentra. My biggest issue to deal with is the diarrhea and CVI can mimic inflammatory bowel disease, but all doctors I have seen this year alone have confirmed that the diarrhea is from the CVI.