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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)

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@ethanmcconkey

Hi @fomdelia, I wanted to join @johnbishop in welcoming you to Connect. You may have noticed I moved your post to this existing discussion on IVIG infusions so that you can learn what others have said about this. Simply click VIEW & REPLY in your email notification to get to your post.

I also wanted to tag @azza1 @maryy and @arcticmark as they have experience with IVIG infusions.

Have you had other symptoms?

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Replies to "Hi @fomdelia, I wanted to join @johnbishop in welcoming you to Connect. You may have noticed..."

Thank you for your help but I don't feel that the other community, IV infusions, will address what I am seeking feedback on. The community for infusions discusses Hizentra as a for treatment for neuropathy. Hizentra was approved for that condition not long ago. I have read the posts so far on the infusion community site and there was no discussion about my condition, Common Variable Immunodeficiency, and their experience with treatment for this especially Hizentra. I am really seeking to hear from those individuals who have this immune condition, how they cope with it and what has been their treatment, if not Hizentra. My biggest issue to deal with is the diarrhea and CVI can mimic inflammatory bowel disease, but all doctors I have seen this year alone have confirmed that the diarrhea is from the CVI.