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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: 6 hours ago | Replies (378)Comment receiving replies
Will send her an email and I may see her on Thursday. As far as I know she needs to have monthly infusions forever as that is how IVIG works, but I know she had substantial relief in the first two days of her first infusion. It is idiopathic SFN and I think that the abnormalities were in the EMG and skin biopsy. There is a trial which I think is still recruiting right now at Brigham and Women's in Boston. You can contact Dr. Oaklander at MGH for information, not sure when they will be done recruiting.https://www.google.com/search?q=doctor+oaklander+MGH&oq=doctor+oaklander+MGH&aqs=chrome..69i57j0.12978j0j4&sourceid=chrome&ie=UTF-8
Replies to "Will send her an email and I may see her on Thursday. As far as I..."
Hi @arcticmark
How are you ?
Please , did you have a chance to talk to your friend ?
I wish you have a good news . Thank you
@articmark
Hi,
I just had my IVid infusion. It is not for PN; it is for yet another (not going there) reaction to chemotherapy. I do many things to battle my neuropathy, this is effective in helping stay in check. If you have questions, I will try to answer.
There are other ways to pay for this.
Hello could you please ask your friend to e mail me aa
I am considering IVIG ,
Many thanks
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Thank you Arctic for quick reply . I am waiting to hear from your friend on my email because i need more information from her. The EMG test for me is normal but it was done from 3 years ago .