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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@arnrob

About 5 years into this god forsaken condition and after about 25 different medications I was given 2 IVIG's. It will not come as a surprise to any of us that those 2 infusions did nothing and the disease continues its relentless deterioration of my life.

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Replies to "About 5 years into this god forsaken condition and after about 25 different medications I was..."
harley22 | @harley22 | Oct 12, 2023

Yes I too have had several rounds of IVIG infusions.
First round was few years ago and I felt no difference in my symptoms so I stopped them.
Last year I got a new neurologist, and he felt I should try IVIG again.
I did 7 - 8 mos at home by a home nurse and I felt no difference again, so my doc discontinued them.

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harley22 | @harley22 | Oct 20, 2023

I also have had many rounds of IVIG infusions, and they didn’t help me at all.
I felt no improvement in my symptoms, so now looking for another option,but my Neuro suggested Rituximab, but Medicare won’t approve it until I do plasma exhange.

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tomdeleo | @tomdeleo | Apr 18 9:32pm

I had it about 5 years ago and it had no effect on my neuropathy.

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