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Thank you soooooo much for the detailed response. I have looked into all of the tests/labs/etc. you've talked about and I appreciate your recommendations. I will be exploring them further with my provider.
I'm fine with providers who can will be honest with me a say "I think there's something going on. I'm not the right provider, but I think you should pursue it further." But usually, I get the "you're too complex to treat," "the labs are fine and there's nothing we can do," and "you need to lose weight or see a therapist because it's all in your head." I know providers can't always give a diagnosis but unfortunately, I've only had one provider who really believed there is something going on and she left the practice.
I do plan on moving forward with an appointment at the Mayo Clinic in Minneapolis. My job is currently doing open enrollment for insurance, HSA, FSA, etc. I'm going to see what I need for a Mayo Clinic, what will be covered, if I can qualify for the financial help, and put as much money as I can into a HSA or FSA account to help with this process.
Replies to "Thank you soooooo much for the detailed response. I have looked into all of the tests/labs/etc...."
When I got medicare I had planned to get a supplement (medgap). It's very expensive but I have not had one bill, nothing. It goes up $10 monthly every year. It is now $221 a month, and with medicare and part D, which is the highest plan all total about $440 a month. I had double compound fracture surgery, I paid nothing. No deductibles, no copay, no 20% on tests, I have had mri's, my cancer labs are very high, and I can see any Dr anywhere. Before medicare i was paying about $100 a month the clinic let me carry. I would put off going to Dr because I couldn't afford it.They have all kinds of plans, I have plan F, but others that are less. My part D is almost $90 a month and only one copay, the rest are free. I got one relative to switch, he had to pay hospital $8,000 because of advantage plan. If you are in this age look into it, you get regular medicare, then this. I had older relatives that have this.
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I am completely sympathetic to your frustration.i have had more doctors tell me those things than good ones who take the time to listen and I am still in limbo...almost a decade later. Good luck. And I hope you find the answers you need.