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Autoimmune Diseases | Last Active: Nov 7, 2018 | Replies (29)
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Oh, and also, the reading I've done suggests that fibromyalgia is actually frequently a co-morbidity of other autoimmune disorders, including lupus. So, it's kind of ridiculous that being diagnosed with that would make any physician think you didn't also have an autoimmune disorder.
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Patty, thank you for your response! I agree that it’s sounds like lupus. There have been so many things that frustrate me about this process because I’ve been searching for a diagnosis for years and am just feeling stuck. Of the typical lupus symptoms, I don’t have the seizures or oral sores (at least I don’t think because I haven’t seen pictures that would show early onset). Especially with a EBV test last year stating that I had recent exposure to the virus yet I was diagnosed with it back in 2008. The recent link of EBV to lupus and other autoimmune is something I’m trying to stress to my providers as well. You’d think that I didn’t live in a big city without lots of specialists based off these responses. I’ve been recommended to the Mayo Clinic at least 3 times in the last 4 years because it these things. Ugh. Just so frustrated.