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Blood Tests & Diagnosis

Autoimmune Diseases | Last Active: Nov 7, 2018 | Replies (29)

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@nikohl7

Hello and welcome! I’m so sorry about the way the rheumatologist treated you. It sounds to me lupus might be a good fit with the malar rash you stated above. Unfortunately some doctors believe in labs rather than the person right in front of them. According to multiple site lab work will fluctuate with lupus depending on where in the disease process you are and not ever lupus patient has the same labs or same symptoms. It’s a very frustrating disease all around, especially when being diagnosed is concerned. Please don’t give up! Find a different rheumatologist, my suggestion would be to try and schedule an appointment with Mayo. I have a post titled “Possible Lupus etc” sorry I don’t remember the full title, the brain fog that comes with lupus is a pain. A comment to the post about getting an appointment was really helpful. I document my symptoms using HelloLupus app. I get to document fevers, heart rate problems, and many other problems that often are caused by lupus. I hope this helps you in some way!

Best of Luck!

Nicole

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Replies to "Hello and welcome! I’m so sorry about the way the rheumatologist treated you. It sounds to..."

Thanks for the reply! I’ll be sure to check out the post. I’ve been discussing scheduling with a Mayo Clinic with my partner and we both feel it’s time to take the plunge.

I wasn’t able to find the HelloLupus app when I did a search. Is that for iPhones or Android? I was able to get a list of apps other people use when Googling that I might try in addition to MediSafe, Fever Tracker, and Curable (and Fitbit when I can get a new one).