It may help to track your pain if you have flare ups and days when you are really hurting. When I was tapering off of prednisone for my polymyalgia rheumatica I would keep a 0 to 10 pain scale as I changed dosage every week or so. I'm not sure how helpful it would be but it's another talking point for discussing with your doctor...what's causing this pain? ☺ I have an Apple watch and Kardia band so I track my BP every morning and take an EKG which also write to the Health app as well as their own app. I'm really not sure it's helping but makes me feel better to know all is well when I get good readings. They do give a lot of what seems like false readings too and that was a little disconcerting until I realized it. I just read an article somewhere that the new tech on the Apple watch may lead to a lot of extra doctor visits that aren't really needed.

Hello and welcome! I’m so sorry about the way the rheumatologist treated you. It sounds to me lupus might be a good fit with the malar rash you stated above. Unfortunately some doctors believe in labs rather than the person right in front of them. According to multiple site lab work will fluctuate with lupus depending on where in the disease process you are and not ever lupus patient has the same labs or same symptoms. It’s a very frustrating disease all around, especially when being diagnosed is concerned. Please don’t give up! Find a different rheumatologist, my suggestion would be to try and schedule an appointment with Mayo. I have a post titled “Possible Lupus etc” sorry I don’t remember the full title, the brain fog that comes with lupus is a pain. A comment to the post about getting an appointment was really helpful. I document my symptoms using HelloLupus app. I get to document fevers, heart rate problems, and many other problems that often are caused by lupus. I hope this helps you in some way!

Best of Luck!

Nicole