← Return to Blood Tests & Diagnosis

Discussion

Blood Tests & Diagnosis

Autoimmune Diseases | Last Active: Nov 7, 2018 | Replies (29)

Comment receiving replies
@johnbishop

Hello @mcgke91, welcome to Connect. I know it's really hard and feels like an uphill battle but I would keep asking questions and learning as much as you can about your health issues...which is what you are doing now, being a strong advocate for your health. @dawn_giacabazi @kdubois @kariulrich and @kanaazpereira may have some suggestions for you.

Here is a good site that speaks to lab tests for autoimmune disorders, by illness. It's not really meant to dwell on but it's just a good reference.
-- https://labtestsonline.org/understanding/conditions/autoimmune/

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: https://www.mayoclinic.org/appointments
Mayo Clinic's Billing and Insurance -- http://www.mayoclinic.org/patient-visitor-guide/billing-insurance
Charitable Care and Financial Assistance at Mayo Clinic -- http://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

@mcgke91 It sounds like you are pretty organized and good records. Do you track your symptoms or write them down? Just thinking that might be helpful to take them with you to appointments.

John

Jump to this post


Replies to "Hello @mcgke91, welcome to Connect. I know it's really hard and feels like an uphill battle..."

Thanks for the reply! I appreciate it. I'll look into the Mayo Clinic and see if my insurance covers it at all as well as the links you provided.

I keep my test results saved on my personal computer. When it comes to medication and symptoms, I use the MediSafe app for when I need to take PRN medications (e.g., migraines, increased pain, etc.) and the FeverTracker app to track my temperature throughout the day. I find though since getting the disappointing news from the rheumatologist, I haven't been as diligent in my tracking as I used to be. Would you recommend tracking anything else or any other apps that help?