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My experience with Small Fiber Neuropathy

Neuropathy | Last Active: May 24, 2022 | Replies (85)
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@laureen8844

Megan . Thank you for your comments. I am truly sorry you are going through this I am going through the same exact thing . You managed to bring me some comfort though as you mentioned you are suffering twitching. I haven't been fully diagnosed with SFN and are going for my biopsy in few weeks but the witching has me concerned . A few people with SFN have mentioned twitching .Thanks

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Replies to "Megan . Thank you for your comments. I am truly sorry you are going through this..."
bogibus | @bogibus | Jan 28, 2021

@laureen8844 the twitching can be really awful at times. I do not have it all the time but often enough to notice and be concerned. This disease is such a weird thing. It attacks every part of the body indiscriminately and the way it jumps from area to area can be both frustrating and scary. I hate that you are going through this...hate that any of us are...but I have to admit, I am grateful to have found Connect. Do you have a date for your punch biopsies? Have you had the TS-HDS antibody test. It is just blood work but it was what gave me my conclusive diagnosis.
Please keep me updated on your results and feel free to reach out to me anytime 😊

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