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My experience with Small Fiber Neuropathy

Neuropathy | Last Active: May 24, 2022 | Replies (85)

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@bogibus

Hank, hi. I have been battling with various issues and wrong diagnoses for years. I was finally diagnosed with small fiber polyneuropathy after labs and punch biopsies. I am already on lyrica, cymbalta and multiple other meds for issues that occur as a result of the effects on various parasympathetic systems. I saw you mentioned cannabis as something you have used for relief. I have pain/freezing, twitching etc especially in my legs but also in my fingers. I live in CO so cannabis is legal and readily available. I also suffer with overwhelming fatigue a lot of the time. I have tried cannabis before have ended up exhausted for 24 hrs after. I tried various strains, many of which were supposed to increase energy but also some for help with sleeping. So far all have left me extremely tired for 24 hrs and I was wondering if you had any suggestions for tyles/strains that you have had some luck with.
On a side note, i tend to have odd reactions to things. I finished a 5 day, 1000mg a day Solu-Medrol infusion treatment 2 weeks ago. Apparently most people end up wired and sleepless as a result of such high doses of steroids. I was barely able to stay awake long enough to start the infusions each day. I am still spending most of my days in bed but it is slowly getting better.
Any help or suggestions you could make would be greatly appreciated!
Thanks
Megan

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Replies to "Hank, hi. I have been battling with various issues and wrong diagnoses for years. I was..."

Megan . Thank you for your comments. I am truly sorry you are going through this I am going through the same exact thing . You managed to bring me some comfort though as you mentioned you are suffering twitching. I haven't been fully diagnosed with SFN and are going for my biopsy in few weeks but the witching has me concerned . A few people with SFN have mentioned twitching .Thanks