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My experience with Small Fiber Neuropathy
Neuropathy | Last Active: May 24, 2022 | Replies (85)Comment receiving replies
@momalin
I hope for your sake that Jennifer's suggestion is correct, i.e. pinched nerve. From what I have heard, neuropathy does present bilaterally as a rule, so being mostly on one side could be a hopeful sign that it is not sfpn. However, if it is, then sorry to say there is no real cure in most cases. One can hope it will subside on it's own, as it does for a few. But otherwise PN treatment pretty much boils down to pain treatment. Marilyn @steeldove just mentioned the usual course followed by doctors: gabapentin, lyrica and cymbalta (duloxetine). Many here resort to cannabis (marijuana or cannabis oil) which brings relief to quite a few, some try opioids (often with disappointing results). Then there are supplements that are frequently recommended for PN, such as r lipoic acid and benfotiamine. Also curcumin for inflammation. If you have any weak spots healthwise in your lifestyle (diet, exercise, sleep and stress level), work on improving in those area as well. I wish you well and hope that in your case what you have is curable.
By the way, you said you were dx'd with neuropathy. By what method did your doctor make this diagnosis? Just wondering. Best, Hank
Replies to "@momalin I hope for your sake that Jennifer's suggestion is correct, i.e. pinched nerve. From what..."
Hank, hi. I have been battling with various issues and wrong diagnoses for years. I was finally diagnosed with small fiber polyneuropathy after labs and punch biopsies. I am already on lyrica, cymbalta and multiple other meds for issues that occur as a result of the effects on various parasympathetic systems. I saw you mentioned cannabis as something you have used for relief. I have pain/freezing, twitching etc especially in my legs but also in my fingers. I live in CO so cannabis is legal and readily available. I also suffer with overwhelming fatigue a lot of the time. I have tried cannabis before have ended up exhausted for 24 hrs after. I tried various strains, many of which were supposed to increase energy but also some for help with sleeping. So far all have left me extremely tired for 24 hrs and I was wondering if you had any suggestions for tyles/strains that you have had some luck with.
On a side note, i tend to have odd reactions to things. I finished a 5 day, 1000mg a day Solu-Medrol infusion treatment 2 weeks ago. Apparently most people end up wired and sleepless as a result of such high doses of steroids. I was barely able to stay awake long enough to start the infusions each day. I am still spending most of my days in bed but it is slowly getting better.
Any help or suggestions you could make would be greatly appreciated!
Thanks
Megan
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Hello all, Hank and @momalin, my Neurologist said that the S SND R Alpha Lipoic Acid is the best. She was telling me about some studies and how the one or ones saying the R is better, were flawed. I use the S and R ALA one. I get it on Amazon. Take care and warmest wishes, Sunnyflower