@laureen8844 The first neurologist I saw was excellent, and diagnosed idiopathic pn. At that point I was feeling mild pins and needles in my legs and feet. When pain began and progressed quickly to unbearable burning pain in the balls of my feet. When I went back to the neurologist, he told me he was retiring. I was referred to another one, and he's still my neurologist.

I don't want to get started with a blow by blow account, but you can read it at a thread about our neuropathy journeys.

What caught my attention was your making a connection between twitching and sfpn. At my last appointment I asked the neurologist if he had noticed the involuntary twitching. He said that he had, and told me that it was RLS, which can lead to twitching in any other place. I don't think that it's noticeable, but my wife is certainly aware of it. When we hold hands it's annoying to her sometimes.

I now have involuntary motions in pretty much every body part. It's worse at night when I'm going to sleep. Twitches fire every second, and often there are multiple motions simultaneously. I can't make them stop for more than a few seconds, and that takes intense concentration. I usually have a strong impulse to scream, but I make myself moan instead. Sometimes I have to get up and move around, eat a snack, read or play a game on my phone. Usually the twitching calms down after a while, and I can eventually go to sleep.

During the day, I think that the twitching is going on all the time, but I guess I'm used to it, and only notice it if I think about it.

As if idiopathic sfpn and autonomic polyneuropathy weren't enough.

Before sfpn I was being treated for major depressive disorder and PTSD and anxiety disorder. Chronic pain has added a new dimension to the mental health issues. My neuropathy is progressing rapidly enough to be concerning to the neurologist. He recently added prednisone to my long list of medications, with the hope that it will slow down the progression.

I have my annual appointment with the sleep doctor Tuesday, and I'm going to ask her about the twitching. (I have sleep apnea and use a Bipap machine.) The number of apneic events has gone up around tenfold over the past year. I'd like to know if there's a connection between twitching and sfpn and sleep apnea. I suspect that she won't be able to give me any kind of answer.

A couple of nights ago I had a bad two hours of twitching, and finally got up. I took a muscle relaxer, which may have helped. I think I need to send my neurologist a note, and maybe have an appointment with him soon.

Finding a competent, compassionate, proactive doctor to a wonderful thing. I hope you will get the help you need soon.

Jim