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DiscussionAnyone experience side effects while decreasing Keppra?
Epilepsy & Seizures | Last Active: 3 days ago | Replies (61)Comment receiving replies
Replies to "Hi, @ahernandez. That is great to hear you have been seizure-free for over a year now...."
@ahernandez are you talking about totally tapering off of Keppra completely? I tapered down just 1,000 mg of Keppra (not totally off it all) with none of the effects you are talking about.
Last year at my last neurologist visit I asked about completely tapering off of all Keppra since I am doing so well. They warned me that if I was totally off all Keppra and things started flaring up again that I could not restart Keppra again. They said the Keppra would not be as effective as it was prior to quiting it completely. Go figure huh? I am presently taking 500 mg twice a day. I’m not willing to gamble quiting it totally since I know I could not return to it if needed.
@ahernandez l was reading your discussion about keppra. I was on keppra since 2014 until 2018. I was looking online and they said sometimes you have to change up meds until you find one that works. I had some of the symptoms you are talking about but l think it might be from my ammonia levels. I do know if you been on a med to long your body gets immune to it and you might have to change but l would tell your doctor the symptoms and see if he will do something. Maybe he will change your med to something else.