← Return to Working and holding a job while suffering from NTM (MAC)

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@windwalker

@ann17, Hello. Fatigue has been the greatest problem for many of us with this disease. That alone makes it difficult to go off to a daily job. I left the workplace in 2005. I was too ill to continue. I went on disability in 2007. I was fortunate enough in that I had rental income to suppport me along with my husband's financial support. @auntnanny and @alleycatkate both brought up good points about the aerosols and chemicals involved in hair salons. You didn't mention whether or not you also have bronchiectasis. If you do, all of those fumes are a no-no. For example: if I use hairspray on my hair, I will cough non-stop all day. Moroccan oil...forget about it! The smell of it tears me up. Is there any way you can move your business to your home? That way you could set your own hours and save on space rental. You could advertise that you have a chemical free zone for those with asthma and other lung issues. I would go to a salon like that if they had one here. I actually left my hair appt. once due to the heavy smell of a Brazillion Blow-out in there. If you are considering a carreer change; perhaps some kind of office job where you are not on your feet. Please keep me posted on what you decide. Before I forget, were you also diagnosed with bronchiectasis?

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Replies to "@ann17, Hello. Fatigue has been the greatest problem for many of us with this disease. That..."

@windwalker Hi, thanks so much for your response. I do have bronchiectasis and MAC. I don't work with bleach or hair colour right now, just hair product as I work at a blow-dry bar and not a full salon. I am considering a career change in the long run because as you said this job is very physical and one way or another involves using chemicals. But till then I might have to stick with it for a bit longer.
I should mention I was diagnosed 2 years ago and but I didn't have any symptoms as in night sweat or weight loss. Untill recently I had few episodes of coughing up blood and chest pain. I am better now and on more antibiotics but I find my lungs more sensitive now to dust and so forth... I will keep you posted after I speak to my Doctor about it.