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Schwannomatosis and Genetic Testing

Brain & Nervous System | Last Active: Oct 7, 2018 | Replies (11)
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@troyanos99

...as I re-read your first email to me, would she need to show symptoms first before any testing or screening can be done?

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Replies to "...as I re-read your first email to me, would she need to show symptoms first before..."
Lisa Lucier, Moderator | @lisalucier | Oct 6, 2018

Hi @troyanos99 -- I appreciate your question. If I were to travel from California across the country for a medical consult, I'd also like more specifics on what was available. What I was told is that if a child shows signs or symptoms, then they would look at doing testing.

As a moderator on Mayo Clinic Connect, I am not a medical professional. I'd highly suggest you make contact with Mayo Clinic through the link I posted, and then you can discuss further. The closest location to you would be Mayo Clinic's campus in Arizona.

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