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Schwannomatosis and Genetic Testing

Brain & Nervous System | Last Active: Oct 7, 2018 | Replies (11)
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@troyanos99

Hello Lisa,
Before we make that decision, is there such a thing as screening or genetic testing for this condition? I am not clear on that yet. We are in California, are there locations in our area?
Thanks for your help!
Maria

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Replies to "Hello Lisa, Before we make that decision, is there such a thing as screening or genetic..."
troyanos99 | @troyanos99 | Oct 6, 2018

...as I re-read your first email to me, would she need to show symptoms first before any testing or screening can be done?

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edda | @edda | Oct 7, 2018

Yes, I got the name of an outfit, that does that and I needed the info for my constant problem with new meds. I could not tolerate most of them and mean meds for ulcers, depression and antibiotics. So I received the website for a gene testing lab. They gave me names of doctors, who were near me and would do the swap of the inside of my mouth. But everyone I contacted did not do it anymore. So they suggested for me to ask my GP, if he would be interested in learning to that. But his answer was negative.
The end result was, I wasted my time with this one. The name was genesight.It really wou Ltd have benefitted me and Medicare was paying for it.

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