← Return to Elevated parathyroid hormone (PTH): How is it treated?

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@hopeful33250

Hello @crankyyankee

We do have a lot in common. My PTH and calcium level goes up and down as well. I do have bone pain but I'm also losing bone mass.

I also have a very low Vit D level, do you have your Vit D level checked periodically? If not that would be a good thing to request at your next appointment.

Here is some information about hyperparathyroidism (high PTH) and if you look at the article there are a number of symptoms listed including bone and joint pain.
https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194
What is the status of your bone mass? Do you have a bone density test done periodically?

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Replies to "Hello @crankyyankee We do have a lot in common. My PTH and calcium level goes up..."

My Vitamin D is low normal at 40. I guess your doctor isn't inclined to recommend a parathyroidectomy. I read (somewhere!) a study in which that surgery helped even patients who did not have consistent hyperparathyroidism. I'm going to see if I can find that again and will post a link.
My bone density has decreased but I'm still only osteopenic, especially in the hip and spine. Here are my numbers:
Femoral Neck: BMD 0.612 g/cm2. The T-score is -2.1
Total Hip: BMD 0.736 g/cm2. The T-score is -1.7.
Lumbar Spine L1, L4: BMD 0.848 g/cm2. The T-score is -1.7.
Forearm: BMD 0.579 g/cm2. The T-score is -1.8.