← Return to Elevated parathyroid hormone (PTH): How is it treated?

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@hopeful33250

Hello @crankyyankee

I would like to welcome you to Mayo Connect. I found your story about normocalcemic hyperparathyroidism to be very interesting as it parallels a lot of my problems with elevated PTH, (sometimes) elevated calcium levels (sometimes) and continual low bone mass despite treatment with meds. My D3 is below normal and just doesn't go up no matter how much Vit D3 supplements that I take.

While I had never heard of normocalcemic hyperparathyroidism, I did a little investigation online and found this information from the National Institute of Health. I found it very interesting and I thought that you would as well. Here is the link, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564219/.

This seems to be a relatively new diagnosis in that it does not fit the primary hyperparathyroidism.

I would certainly be interested in hearing how you are following up on this matter. Will you post again?

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Replies to "Hello @crankyyankee I would like to welcome you to Mayo Connect. I found your story about..."

The doctor is still experimenting using D2 and now D3 to see if this makes a difference. The D is now up to 27 and we are hoping for at least 30, the absolute minimum. My calcium is still a little high. I wonder if fatigue is associated with PTH.

I saw that nih piece. I've been collecting info since my diagnosis in early December. (I like to be as informed as possible when talking to my doctor, which may drive him nuts, but makes me feel like I'm a collaborator in my medical care.) I will post after my February retests and doctor visit.

Are you taking Vit K2 with the Vit D3?

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