@guener - Wow, huge kudos to you for reading through that novel of mine, and providing such thoughtful answers! Much appreciated!
I'm honestly not particularly worried about the colonoscopy per se, I just want to make sure I'm doing everything I can in advance to make sure there's no reason to doubt the results and/or need to repeat the procedure because a certain test or possibility was missed. And unfortunately, my doctor has proven difficult to reach to ask questions, and/or I'm not sure I feel confident in his office's ability to provide accurate information, which is why I'm trying to verify things myself.
Totally true; there's a million things that could be causing my issues, and it's by no means a clear-cut case of oh yeah, you're a textbook case of UC/Crohn's/etc., but we're running out of things to check and the infectious disease specialist -- who I trust completely -- thinks this is a reasonable avenue to explore.
I actually have submitted my medical documentation to Mayo upon referral from my infectious disease specialist; Mayo's infectious disease department actually called this morning and said they're referring me/passing that over to the general Internal Medicine department instead (not sure if that's good or bad -- I'm a little worried that's going to increase my wait since a more general department probably has more requests). I just hope someone can help (and soon). It helps to hear stories about others who'd been given the "all in your head" spiel and yet eventually found answers and help. Glad your mom was able to push through!
Yes, I have a list of medications to avoid that their office provided and have asked about the ones I mentioned specifically, but like I said, I believe previous information they've given me has been inaccurate, so I'm reluctant to rely solely on them to provide good information (I'm not just relying on internet advice either, but it would give me an idea of what to research).
All excellent advice. You really answered a great many of (my great many!) questions and in an intelligent and well-considered way. Again, I very much appreciate it!
Hi, have you considered being prescribed by your Gastroenterologist or who is doing the the Colonoscopy to be prescribed "Suprep" bowel prep? It's so much easier than having to chug down this huge jug of a powder (PEG, Polythene Glycol). There is a black box warning on FDA website about Polythene Glycol, also known as Miralax, Clearlax, Laxido, GoLytely, PEG.. It may soon be taken off market. It it made from the same ingredients used to make household cleaners, Toothpaste, Antifreeze. I don't know why Doctors prescribe this laxative like candy, especially to children. If you look at ingredients used in Antifreeze or household cleaners, you will either see PEG, or Polythene Glycol. It's dangerous, or you can go to FDA website and type in black box warning, PEG, or Miralax.. The "Supprep bowel kit" is so much better. Just ask for it, they will prescribe it. It comes in two small bottles..about 8 ounces, you can chill them if you want but not necessary. You take one bottle (they may prescribe split doses) mine was just the two bottles the evening before so I did not have to wake up at 4am the next morning. I had the lemon flavored, and the taste is actually pleasant. You just put it in a small cup that comes in a kit. Then add a little cold water, not much..to the full line and drink it slowly for next two-three hours. No cramping. No huge jugs. Very easy. You may find you don't need the second bottle. Within about 1/2 after taking the first bottle, you are going. It cleans you out well, but just with one or two small bottles. I did mine within a couple of hours of each other, and I was done by about 8pm the night before the Colonoscopy. It works so well, I did not have to use the second small bottle. Very safe and easy. You can even Google it if you want. Just some thoughts. x