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Possible Ehlers-Danlos Syndrome with craniocervical instability

Bones, Joints & Muscles | Last Active: Aug 24, 2023 | Replies (66)
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@redhead63

Hi:
I saw my ear Doctor today and he ordered me an MRI of my Cervical for the 8th of October. I did not informed him about me going to the Mayo Clinic. This Doctor did my ear surgery he inserted a balloon into my right ear. I know for a fact that I have Advanced Arthritis in my Cervical and Subluxation in C2-C5 but he doesn’t know that. I was diagnosed with FND by Mayo even though I had the x-ray done at the Mayo. Not one Doctor at Mayo said anything about me having Advanced Arthritis and Subluxation. I hope I am doing the right thing. Once you are label for FND no Doctor wants to help you. That is the way it is. So that is why I am doing this way.
Thanks

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Replies to "Hi: I saw my ear Doctor today and he ordered me an MRI of my Cervical..."
29821 | @29821 | Sep 28, 2018

What is FND?

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jcnel | @jcnel | Sep 30, 2018

I completely understand as my 15 year old has battled this since 2-1-18. We've tried to get into Mayo and no such luck. They do have a PNES clinic but I don't know alot about it

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