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Possible Ehlers-Danlos Syndrome with craniocervical instability
Bones, Joints & Muscles | Last Active: Jun 20 10:24am | Replies (68)Comment receiving replies
Hi:
Do you live in the States? I do. I have no idea what to do. I am so freken tired of going to Doctors. I had 3 tubes inserted into my right ear and no Doctor can tell me why I had failed tubes. I did have a Balloon inserted into my ear canal about a year ago but there is something wrong with that ear. This has been going on since 2013. I cannot imagine them trying to figure out why I have this balance problem and they keep telling me it is not related to my ear, or brain. It’s my freken Spine and now I have to convince some Doctor that. It will take me years to do that. Have any ideas?
Thanks
Debbie
Replies to "Hi: Do you live in the States? I do. I have no idea what to do...."
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Well ear problems can cause balance problems. Any issues with the spinal cord or cerebellum can also cause balance problems. You would have to post an image of your cervical spine or the whole spine if you have one. If you have a copy of your images just insert the CD into the computer and run it in MicroDICOM. It's a free DICOM viewer you can download online. Once installed open it and to the top left there will be a CD image. Click this to open the CD. Once you have the right image hit print screen on the keyboard and paste it into paint and save it. Then you can upload the image here. If you don't have your scans you can ask whoever done them for a copy on CD-ROM. You can Private message the image to me if you want but the only knowledge I have regarding the spine is about Grabb-Oakes and CXA measurements.