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@derrickbff

Well I actually sent it to Neurosurgery or so I hope. I don't know if they're both equally uniformed departments on EDS. I actually sent the scans of the upright MRI scans I had done here with Dr. Gilete's report with his measurements (which are pathological). I also stated that I took the measurements on the above image before he evaluated me. I then said that the measurements I took and the measurements he took were only off .7-1 mm/degree, (which they were), to try to avoid eye-rolling about a patient taking measurements by his or herself. All they will have to do be informed on pathological skull angles and know that the doctor in Spain is legitimate. After that I see no reason other than incompetence and/or arrogance to refuse me treatment for this.The only option after this would be to fly to Spain to get my CXA normalized by Dr. Gilete. I would need someone to go with me though, that's the hard part. I'm so confused and have Avoidant personality disorder so it's a double-whammy. I'm completely fine with paying a medical bill for the rest of my life I just want to live instead of being afflicted and miserable because I don't have cognition anymore.

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Replies to "Well I actually sent it to Neurosurgery or so I hope. I don't know if they're..."

Hi:
Do you live in the States? I do. I have no idea what to do. I am so freken tired of going to Doctors. I had 3 tubes inserted into my right ear and no Doctor can tell me why I had failed tubes. I did have a Balloon inserted into my ear canal about a year ago but there is something wrong with that ear. This has been going on since 2013. I cannot imagine them trying to figure out why I have this balance problem and they keep telling me it is not related to my ear, or brain. It’s my freken Spine and now I have to convince some Doctor that. It will take me years to do that. Have any ideas?
Thanks
Debbie