An Ehlers-Danlos diagnosis really isn't as important to me right now as getting my neck fixed due to the possible EDS. I tried to get genetic testing but due to only having hyper-elastic skin and no dislocating joints (other than thumbs) I was denied, Locally that is. Though she, (the rhuemotologist), didn't notice any hypermobility, my last MRI report stated that my c2 facets were significantly exposed in right/left rotation. It then stated in the next sentence that "this may represent hypermobility" . I'm actually trying to get craniocervical instability diagnosed because that's what would be causing my symptoms for the most part. Then hopefully I can get an odontoidectomy to reduce the retroflexion of the c2 vertebra as well as fusion for the unstable area. The report I got from Vicenç Gilete, a Neurosurgeon from Spain who deals with Chiari malformations and Ehlers-Danlos complications, is the only doctor who agrees that this is most likely what I have. I included his report in the package I sent. His measurements of my skull angles were pathological and indicative of brainstem compression. An Ehlers-Danlos diagnosis would be nice but that's at the bottom of the to-do list. Though it would be good to get vascular EDS tested for because it's dangerous. Do you think they will be upset that I added measurement tools with pictures to the package? I only do this because, like I said in the first post, I've been dismissed as a psychiatric patient for the last 8 years. How does loss of balance and dysphagia/globus sensation stem from depression...?

Can you add me to EDS groups? I can seem to do it