← Return to Booked Mayo for My Son - Now Frightened

Discussion

Booked Mayo for My Son - Now Frightened

Just Want to Talk | Last Active: Nov 1, 2018 | Replies (26)

Comment receiving replies
@colleenyoung

Hi @devsmaj
I can imagine your apprehension. It's a big trip and an emotional not to mention financial investment. Can you tell me a bit more about your son, his symptoms and which specialists or tests he's been scheduled with at Mayo Clinic. Then I can connect you with other people who may have experience at Mayo Clinic in these areas to share with you. Please only share as much as you're comfortable with sharing.

Have you seen the discussions in the group Visiting Mayo Clinic? They may be helpful as you prepare for your visit: https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/
Which Mayo Clinic will you be going to: Rochester, Jacksonville or Phoenix?

Jump to this post


Replies to "Hi @devsmaj I can imagine your apprehension. It's a big trip and an emotional not to..."

Thank you, Colleen. My son has been scheduled to “Internal Medicine” but no further info from there. From what I understand, he will be assessed by a physician there, then tests and other doctors are scheduled based on that assessment. I have to put $7000 USD down before we even arrive (almost $10K CAD). The tests and procedures my son has had here in Canada are all gastroenterology-related: 3 gastroscopies/endoscopes, barium swallow, ultrasound, 24 hr ph study, impedance test, gallbladder and liver study (HIDA scan), manometry test, MRI of pancreas and midsection, 12 biopsies of stomach, polypectomy (stomach), H Pylori test, test for celiac, numerous blood tests, we have tried low fodmap diet, gluten free diet, ... i may be forgetting some. All basically gastro. I am beginning to think this is not gastro-related as i dont think there are any more tests that could be done. He is nauseated 24-7 (no nausea medications work), he does have a very weak esophageal sphincter but no acid reflux symptoms, is very slender and lost an additional 30 lbs since this started, has low stress tolerance (and once had very high tolerance - he was a competitive athlete), trouble sleeping, back pain, muscle cramping (not severe).... Nausea is the #1 concern. Thanks everyone for listening. Im just scared that Mayo Clinic - the best medical care in the world - wont be able to help him either. Yes - I am trying to think positive but am so scared. They HAVE to find out what this is. They just HAVE to.