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Body odor without sweat -- Sjogren's Syndrome?
Autoimmune Diseases | Last Active: Jul 5, 2023 | Replies (19)Comment receiving replies
Thank you for sharing this. A little over a year ago I started noticing dry eye and dry mouth (at night) issues, after having dealt with dry skin issues for years, but figured since I live in Los Angeles, that probably has a lot to do with it. I went to a Kaiser eye Dr. a few months back and he said I have blepharitis and he recommended cleaning my eyelids, warm compresses, antibiotics to put on the edge of my eyelids, and frankly I felt the root cause had to be something else, so I have not done the antibiotic treatment faithfully, and things have not really changed . My gut feeling has always been that I have some early symptoms of perhaps diabetes, and have found links online to dry eye and dry mouth. Now I’m noticing a strong armpit odor, which I have never had, I’m 56, in great shape, I have a very healthy diet, I’ve been fully gluten-free for 3 to 4 months now, have taken out sugar almost altogether, do not take any medications, just vitamins. I just heard about Sjogren’s but haven’t had any panels, don’t know what ANA you mention even is. And lip biopsy? Agh. I just trust in whole foods to heal and keep trying options. I wonder if sodium intake has something to do with this.
I appreciate your sharing your findings and I’ll try to share more as I learn. Thank you!
Replies to "Thank you for sharing this. A little over a year ago I started noticing dry eye..."
I left out that she stopped sweating also, which made exposure to heat a challenge, as we need to sweat to cool off.
Good evening, @wrldctzn. How nice to meet you! Kudos to you for all the positive things you have going on in your life. I, too, believe that what we put into our bodies has a great deal to do with our general health.
I have Fibromyalgia, among other things. When I was still working in the school system, I never could get enough water to drink during the day. Perspiration would drip down my face. I had rivulets of sweat down my back and pretty much everywhere else. It was so
embarassing!
Also, my best friend has some of the symptoms you mentioned. I had never heard of the disease before her. Interestingly enough, she is Type Two Diabetic, as am I. She is on a super strict diabetic keto diet. I do Lazy Keto. Just a bit more carby. Gluten free, both of us.
I don't know if any of this is connected. But you have given me some things to think about. And I hope that with continued discussion with others on here, you will find some connections that will help you and your physicians to figure this out. I hope you will check in with us again so we can compare notes!
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My mother-in-law began having the same symptoms you describe around age 50, but she was a heavy smoker so all assumed her dry eyes and mouth were due to that. A year or so later she began having pain when walking up stairs and in hand joints, Sjogren's drys out the joints, but she assumed it was arthritis. She was in the early stages of Sjogren's a disease we had never heard of before. Even if you don't have Sjogren's be sure to keep your mouth lubricated as it led to her beautiful teeth being destroyed and she eventually had to have implants.
After diagnosis she was sent to a Sjogren's specialist at Script's in La Jolla CA. He told her he wouldn't treat her unless she quite her smoking (3+packs a day) because that drys the mouth and aggravates the disease. She was furious, kept smoking and Sjogren's wasn't the cause of her death, it was lung cancer at age 70.