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Body odor without sweat -- Sjogren's Syndrome?

Autoimmune Diseases | Last Active: Jul 5, 2023 | Replies (19)

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@redhead63

Hi:
I also have Sjogrens without the positive SSA and SSB. I had a high ANA, dry mouth, dry eyes, extremely dry skin and a positive Lip Biopsy. I also do not sweat like normal people, I never notice any body odor coming from my arm pits but I will pay attention now. When I workout I get very red in the face without sweat. I think its got something to do with my Autonomic System not working right.
Take Care
Debbie

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Replies to "Hi: I also have Sjogrens without the positive SSA and SSB. I had a high ANA,..."

@redhead63 - Fascinating! Thanks for replying to my post! I'm a very complicated situation, because my Sjogren's antibodies AND my ANA have come back negative, and I only had one marker come back slightly positive on the Early Sjogren's panel. In addition, I'm on a plethora of medications for a variety of other health issues, which is what we've always attributed my dry mouth/eyes to. In fact, as I'm writing this, suddenly it seems far-fetched to think that Sjogren's could still be the answer, but the rheumatologist still seems to think it's a possibility, and it sure seemed to "fit" (at least before I started listing the negative test results lol). I'd never read anything about the sweating thing though, but it's something I've noticed and seemed to make sense with Sjogren's, so I was curious if anyone else experienced something like that, in connection with Sjogren's or not.

If you don't mind me asking, how long ago were you diagnosed, and how long A) were you actively pursuing an answer before being diagnosed, and B) how far back do you recognize symptoms now that you know more about it?

Another interesting observation! I've been really struggling with whatever's going on with me for a few months now, so it's been a fair stretch since I've really exercised like that, but I definitely remember my cheeks always getting super red and I've always gotten easily overheated, and I don't think there's usually much sweat involved (although of course that's subjective, and could be an exaggerated memory). Definitely got me curious now!