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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
I am Marsha and being considered for a CAR-T experimental trial for stage 4 renal cell carcinoma. My first treatment was with immunotherapy (2 drugs) started in Nov 2019 & that caused me to get Gillian Barre Syndrome (6 weeks in the hospital). I went on Cabometyx for a year & it stabilized my cancer until my last check up this month. I have developed Aspergillosis, a fungus in my lungs & so I cannot be considered for CAR-T until my infection is fully treated. I’ve been on anti-fungal meds since October ( on & off for 5 months). I am starting a treatment of Lenvima & Afinitor this week and until I can try to get into the CAR-T trial; hopefully by summer. So, this discussion is very helpful. Thank you for including me.
Replies to "I am Marsha and being considered for a CAR-T experimental trial for stage 4 renal cell..."
@panamaj, what great news that CAR-T is now being trialled for treatment of renal cell carcinoma.
As you deal with treating the lung infection aspergillosis, you may be interested in connecting with members in these discussions
- Aspergillosis https://connect.mayoclinic.org/discussion/aspergillosis-1/
- Aspergillus with MAC https://connect.mayoclinic.org/discussion/aspergillus-with-mac/
What questions do you have as you prepare for CAR-T therapy?
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Hello @panamaj - I see this is your first post.
Welcome to Mayo Clinic Connect, an online community where people can share experiences and ask each other questions about any health issue.
We are not medical professionals who can offer medical advice.
I see you are already following the cancer group, good for you.
Thank you for sharing your story. It is great to see that Car -T is being considered as a treatment for more cancers at this time. Just a few years ago the criteria was even more stringent.
I am excited for you that Car T may be a treatment option. Feel free to ask your questions about the Car T experience, I will help where I can and I am sure others will as well.
Will you stay connected so we can continue to offer you a place to to talk?
Take care.
Bob