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DiscussionCAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
Replies to "Thank you for the update. Is your wife needing additional care due to speech and motor..."
This really has been a tough time for you! I'm sorry to hear about your dad, but if there's a bright spot in all of this, it goes by the term CAR-T. Not to be concerned about the infusion... it's actually interesting. Two nurses handle it...one constantly checking vitals and the other controlling the flow based on the vitals. It's really anticlimactic. They'll keep her and monitor for several hours..as I remember, 4 or so... then if no reaction, away you go back to GOL. Then in a day or two, she'll probably be hospitalized for a while. The hardest part there is the separation. My wife will need the rehab because she was in pretty poor shape when this started, and she's lost a lot of strength while hospitalized. As the doctor told me this morning, "she was in pretty tough shape when she came in -- she hadn't been giving herself enough to eat." Whatever you do, remember what they told you...everyone is different and responds differently. Not to worry... it'll work out and she'll do just fine. Remember---the best in the country are taking care of her!