← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

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@ruttgerbay

She's having kind of a rough time...day by day things change. Last blood test resulted in a bag of platelets, magnesium and phosphorous. Neutropenic as well. No real interest in eating. Keeps losing weight, gets angry when I encourage her to eat. Other than that.... Scheduled to start the process a week from today with a couple of more tests, followed by line placement, then with chemo before the infusion which starts on the 28th. No real idea about the impact of COVID-19: Mayo Rochester has shut down elective surgery, office visits and procedures effective 3/23. I highly doubt this would be considered elective. We're doing what we've been doing for the last 11 months or so .... staying home, except for trips to the hospital for blood tests (2Xweek) and into Mayo for whatever. I make occasional runs to the pharmacy for whatever new prescription the docs think will help whatever it is that day and to the grocery. Glad we live in a small town where there are no crowds and folks aren't panicked over toilet paper! Thanks for asking!

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Replies to "She's having kind of a rough time...day by day things change. Last blood test resulted in..."

Hello @ruttgerbay - It sounds like you are very patient. Do your best to stay that way. I can relate to what your wife is going through. My wife laughs (now) about how she had to mash the noodles in my soup in order for me to eat them.

Stay strong - Thinking of you both. Reach out anytime when you can.

Hello @ruttgerbay - Just checking in with you. Car-T infusion date is very near from the timeline you identified in your last post. I want you to know that beyond your family and friends, there are many supporters out here in Mayo Connect land.
How are you Doing?
How is your wife doing?

Keep in touch, we are rooting for your entire family. Take added comfort in the fact your wife is being treated in one of the best health care systems in the country and that the Transplant House take their position in health care very seriously as well.

I encourage you to reach out at any time.