← Return to CAR-T Cell Therapy: Introduce yourself and connect with others

Discussion
Comment receiving replies
@raemark

I'm Mark in Iowa. I was infused on Apr 17, 2017 and was admitted the next day to the hospital. Neurotoxity put me in ICU for a couple days, hospital total 10 days. I remember very little for a week of the time. I found out I at times was yelling, trying to get out of bed (restrained by up to 6 nurses), couldn't talk, etc. We certainly hope that Graydon doesn't have neuro to the same degree. Will be praying for you both ….

Jump to this post


Replies to "I'm Mark in Iowa. I was infused on Apr 17, 2017 and was admitted the next..."

Mark, Thanks so much for the good thoughts and prayers. Graydon is experiencing the neurotoxicity as well. Grade II they called it. I am holding on to the hope that the T -cells are working. Although not a scientific correlation between side effects and outcome, it does give me hope knowing that other patients have experienced these side effects and progressed to a scan free of disease. I think that is what is keeping us going psychologically. Thanks for the note and for taking the time to weigh in. Greta

  Request Appointment