Hello @carsonamy07, welcome to Connect. I want to thank you for reaching out to Connect. There are a lot of members here with similar health problems and it's a good place to safely share information and find out what others are doing or have done for treatment. There currently is another very similar discussion that you may want to read through here:
I'm glad you have met @peach414144 and @oldkarl who have provide some good information. I am tagging our moderator Kanaaz @kanaazpereira to see if we can move your post and the discussion to include it into the above discussion where you will meet other members and have more exposure for your post and questions you may have.
@carsonamy07 have you thought about seeking a second opinion or a referral?