Hi, @pattywelch - It must be so disappointing and frustrating to not get an appointment at Mayo Clinic. Unfortunately, because Mayo Clinic has more requests for appointments than available openings, other factors do come into play. Appointments at Mayo Clinic are prioritized on the basis of medical need. Availability depends on the nature and urgency of the problem and Mayo Clinic's ability to help (as determined by a Mayo Clinic doctor). The complexity of the medical condition and, for less complex conditions, the availability of care closer to home are also factors. Mayo would not want you to incur additional costs for evaluation or travel if there is not care to offer that is different from what you’re already receiving.

Nonetheless, it is hurtful to get such a response. I get that.

Another option would be to go to a facility in the Mayo Clinic Care Network, https://www.mayoclinic.org/about-mayo-clinic/care-network/members.

I am reassured, though, that you have an appointment with your neurologist tomorrow already. Did he or she wish to refer you elsewhere because s/he doesn't have experience in PSP or because you requested a second opinion?