Hello @pattywelch

As Lisa, @lisalucier, said it is interesting that your doctor is changing your diagnosis from Parkinson's to supranuclear palsy. Had you been taking Parkinson's' meds (like Sinemet or others)? If so, were the meds helpful?

When you originally posted in March you mentioned that you had no tremors but you did have a lot of stiffness. At that time I posted about physical therapy and a regular exercise program being helpful for PD symptoms. Were you able to get involved with programs like that?

Currently, what is your most difficult symptom?

I look forward to hearing from you again and getting to know you a little better.