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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@windwalker

I went off of all antibiotics 2 months ago. I took this initiative myself. I have been on a bi-monthly regimen of ciprofloaxacin since 2013. I was mac free by 2014. I remained on the cipro as a deterrent all these yrs since with no problems. I had noticed that in recent times; it was giving me bad leg and foot cramps. Two months ago when I started on my usual cycle, the cramps were super severe, so I stopped taking it. It used to be that when I finished a med, I could go about 40 days with clear lungs and then they would start getting gummy again and knew it was time to go back on one. So far, my lungs have stayed clear for two months now. I am thinking it could be due to me isolating from the covid-19 and I am not exposing myself to too many strange germs. I do not recommend anybody do what I did. I do have an upcoming appt at Mayo in June and will see what my new dr has to say. Stay safe everyone!

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Replies to "I went off of all antibiotics 2 months ago. I took this initiative myself. I have..."

Hi Terri! Wow I think that’s amazing! I was happy when the dr told me to stop the Toby. But you did this and I think that is great. I am not on any meds for my lungs, I do albuterol 3 times a week. I am doing and trying meds for RA. All the best to you. Stay safe Rita

@windwalker Terri, Great! Good luck with staying off the meds!