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DiscussionNew Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
Replies to "Windwalker. The nebulizer machine for the amikacin is different. A little sleeker and smaller. There is..."
“@sounder27That is a very good and helpful explanation for me. You must have been in education! If not you would have been a good teacher. Thank you. irene5
@sounder the Pari Eflow is a fantastic machine. My Dr said she had a patient with a pari for 20 years and still going strong. I have one but diddnt realise it was the only machine for using Arkirice! We do not have that follow up and med delivery in New Zealand, thats fantastic.
Thanks for posting this. I never learned to use my thumbs for texting but even when not having to type with one finger, it's a long process to describe for those who never used Arikayce. I stopped Arikayce in December but I always felt that, after the cleaning/disinfecting procedure, the parts were as sanitary and safe as possible. I continue to do the whole thing, once a day, every day, for my neb cup and aerobika.
Windwalker. The arikayce team sends a registered nurse to be with each patient while they use the medication for the first time in case of a bad reaction and to carefully instruct in the whole process of assembling and proper usage. Nurse is wonderful and very informative. Also the Arikayce team follows up periodically to see if you are having any adverse reactions. They are always available via phone if you have any questions.