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New Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
I appreciate the replies. Yes I have been on on the big 3 daily. Last CT showed new nodules and the previous ones are again noted but getting larger. Concerned if maybe I am becoming immune to the antibiotics and that’s why they aren’t working. I mentioned the amikacin awhile ago to a previous pulmonologist who said stick with the triple 3 because the potential side effects from the inhaled amikacin were pretty bad. I will mention it to my new doctor to see what they think. It’s a terrible feeling when they are agitated. I felt as if my lungs would literally sizzle if water was poured over them. Doctor said the same about the steroid. Worried it would make you more vulnerable to infections. Nannette- Hoping for good news for you with your CT and sputum test.
Replies to "I appreciate the replies. Yes I have been on on the big 3 daily. Last CT..."
@laura34, Hi Laura. How long have you been on the Big 3? I had good success without going on them. You can see how I was treated if you click on my picture icon. I like to point that out sometimes to let people know that there are other ways to treat MAC besides the Big 3. It will all depend on your susceptibility test of course. Maybe you can speak to your dr about that.
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Laura34. I have been taking the Amikacin/ Arikayce since last October. I have been taking it every other day with literally no side effects. At the daily dose I began to loose my voice so my pulmonologist changed me to every other day. I am not on the big 3 because 2 of those drugs affect my heart rate adversely and my doc felt I was not able to tolerate them. I was scheduled for a ct in June but doc has said we will wait until August because of the corona virus. At last ct scan I have nodules and 3 cavitation lesions