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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@alleycatkate

@windwalker @sueinmn ...Hello. I actually had 2 separate injections into my thumb back before this virus hit. My thumb was frozen in place and the 2nd injection (about a month after the first) unlocked it. It still is not great but there is a little flexibility. I had scheduled surgery but then I did not want to go through with it after the virus was starting. I am hoping it may resolve on it's own...not sure. My 3 adjacent fingers to that thumb were all triggering and with the shots and some home exercising, they are almost back to normal. Always something. The shots hopefully will bring some relief. Good luck. Kate

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Replies to "@windwalker @sueinmn ...Hello. I actually had 2 separate injections into my thumb back before this virus..."

I appreciate the replies. Yes I have been on on the big 3 daily. Last CT showed new nodules and the previous ones are again noted but getting larger. Concerned if maybe I am becoming immune to the antibiotics and that’s why they aren’t working. I mentioned the amikacin awhile ago to a previous pulmonologist who said stick with the triple 3 because the potential side effects from the inhaled amikacin were pretty bad. I will mention it to my new doctor to see what they think. It’s a terrible feeling when they are agitated. I felt as if my lungs would literally sizzle if water was poured over them. Doctor said the same about the steroid. Worried it would make you more vulnerable to infections. Nannette- Hoping for good news for you with your CT and sputum test.

@alleycatkate Ouch! That must have been awful! Glad your fingers are doing better. irene5

Kate, that is funny that you mentioned your fingers getting 'locked', mine has done the same. I figured it was due to dehydration of something.