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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@nannette

@laura34, yes, Laura, I always have the burning but mine is relatively mild. I always feel it and have always thought that's just the chronic inflammation part of the chronic lung disease. I took the big also about two years and my MAC has come and gone. Not sure what it's doing right now as I will have a CT scan and sputum test in June. I mentioned it to my infectious disease doctor once and she said they have been using Azithromycin for the inflammation but I didn't ask if it was a maintenance dose or just for a few months. My other guess is steroids but maybe someone else knows on this site. Nan

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Replies to "@laura34, yes, Laura, I always have the burning but mine is relatively mild. I always feel..."

I too had that burning sensationfor several yrs. I was worried that I had cancer or something, but it turned out to be acid refux. My esophagus was so burned by my own gastric juices coming up my throat at night. Once I got the reflux under control, the burning went away and my esophagus healed. While going through it; I thought it was my trachea that was burning, but it wasn't.