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New Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
Hey everyone. Been some time since I posted on here. Well it’s been over a year since I been on the triple 3 and I don’t think it’s working. I’m curious if anyone is having similar symptoms...my lungs feel like they are on fire. They are painful and some days are worst than others but always chronically pained. Last 2 days have been worse than normal and now I have a swollen lymph node on my right side of neck. Never had that before. Ever. Hopefully once the travel restrictions are lifted they will do another biopsy to confirm if the MAC infection is still active which I’m sure it is. I feel it anything it’s gotten worse not better. Curious if anyone else experienced the burning pain.
Thanks
Laura
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@laura34, yes, Laura, I always have the burning but mine is relatively mild. I always feel it and have always thought that's just the chronic inflammation part of the chronic lung disease. I took the big also about two years and my MAC has come and gone. Not sure what it's doing right now as I will have a CT scan and sputum test in June. I mentioned it to my infectious disease doctor once and she said they have been using Azithromycin for the inflammation but I didn't ask if it was a maintenance dose or just for a few months. My other guess is steroids but maybe someone else knows on this site. Nan