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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@brigby

@cindyrue
Hi there, like you I keep pushing myself to work, work out, and I am not being treated with The Big 3 right now. YES I agree at times my other body systems are being attacked, especially GI tract, though the research says the disease only spreads outside the lungs in those with immunodeficiency (HIV). Just got another sputum sample back with more fungus, so my ID doctor just ordered another sinus & chest CT scan in hopes of determining if it is just a colonizer, or if it is causing disease. Just had both scans in January, I will glow in the dark before long, LOL! Prayers for all.

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Replies to "@cindyrue Hi there, like you I keep pushing myself to work, work out, and I am..."

@migizii it was interesting reading your input about outcomes from your sputum test, cindyrue, asi have not heard anyone else discuss getting a “colonizer” type outcome......which is what happened to me with my only sputum tests, to date. Even though I asked my doctor what all this means and I seem to understand what it means, does colonizing cultures lead to disease?