Thanks for your assistance. I have no side effects so far. I am followed by an ocular clinic and had no damage to my eyes as of my first appointment (one month after starting the medications). Also monthly bloodwork, EKG and will talk to my doctor about hearing tests as I understand that hearing can also be affected.

Like sueinoregon, I am terrified of taking these medications and have been reminded by a few people that I am putting poison into my body by taking them - not very helpful. I'm also terrified of not taking them and risking permanent lung damage - my doctor said I could wait until I had cavitation in my lungs, which isn't anything to take lightly either. So I opted for the medications.

I appreciate being able to connect with other people with mac as it is a very isolating illness between the exhaustion and intermittent nausea (which I thought would get better on the meds). Also, I have begun to see so many things in my environment as sources of infection.

I see a respirologist who diagnosed the mac and started me on the meds. There is a specialist in a city near mine so I will ask for a consult but have read it is not a good idea to stop taking the medications once you've started - unless you have bad side effects (eg. eyes or liver function). My respirologist said he'd refer me anyway if I had any complications.

Anyway, forgive my rambling but it is overwhelming at times. I expect that I will adjust to this new reality in time.

Thanks for your assistance,