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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@laura34

Tdrell...I have a follow up with eye doctor Tuesday morning. I will ask for an eye culture. She is convinced it’s an infection from the MAC. The red ring formation around the iris is textbook sign similar to Ocular TB infection. The steroids helped with pain and redness but I’m left with a strange white spot where the red ring was and a little pain left. She said to continue with ethambutol as she is pretty sure it’s not from the drug. Pulmonologist said to stop the Ethambutol but said the eye doctor would know more if I decide to continue with the medication. Frustrating...this whole experience seems to be a roller coaster ride of ups and downs.

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Replies to "Tdrell...I have a follow up with eye doctor Tuesday morning. I will ask for an eye..."

@laura34, Hi Laura. I looked up Ocular TB infection on various ligit sites. Wow, it is so rare that only 1%-2% of the population get this. How in the world did you get so lucky? I am curious, did you do much in the way of world travel in your life? From what I have read, it is not typically in the United States. I am so sorry that you are experiencing this. Please keep me posted on how you are feeling and dealing with this.