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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@windwalker

@induh66 Hi. I am glad your procedure went alright. I didn't want to say anything until after your bronchoscopy. I had one done in 2005 by a sadistic doctor who did NOT give me the twilight sedation for mine. She only gave me 5 mg of valium (which did nothing). It was the most horrifying experience I have ever had, and vowed that I would rather die than have another bronchoscopy. She had two orderlies hold me down while she did the procedure. She jammed the scope down into my lungs with such a force that it hit the end of my lung with a thud. I thought I'd go through the roof! Plus, the tube going down into your bronchial tube filled the entire space so that I had the sensation of suffocating, that is the point where the orderlies had to pin me down. I did not know at that time that you should be put under for that procedure. I hate to say this, but I think she did not like white people and took it out on me. I say that because my gut feeling felt that when I first consulted with her. I should have listened to that feeling and gone somewhere else. So, just clarifying for anybody getting a bronchoscope; twightlight sedation is supposed to be induced.

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Replies to "@induh66 Hi. I am glad your procedure went alright. I didn't want to say anything until..."

Yes, i am so glad I did not hear that story before the procedure, Terri. Let this be a lesson to those undergoing in the future, conscious sedation and everything will be fine.

@windwalker ...that is a horrific experience! I am gasping as I read it!! Sorry for your bad encounter with that stinker doc...and you are so right...the gut tells you what to do if you listen.

Oh my gosh Terri! My mom had an AWFUL experience, felt she was being waterboarded and has sworn she will never do it again, but NOTHING like that! I cannot even fathom!!!!!