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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@lnduh66

Thank you so much for all your responses and you have definitely eased my anxiety going into this procedure. This is a case where this whole thing came out of the blue to me. Almost 3 years ago I had bilateral mastectomies for breast cancer and in 6-month followup my oncologist ordered an abdominal CT to make sure there was no pancreatic involvement (due to an ATM gene mutation). Good news..no pancreatic cancer; the bad news...bronchiectasis with significant mucus plugging, differential includes MAI infection. This was followed up with an abdominal MRI (for a liver lesion) and then a HRCT. These all confirmed the diagnosis radiographically. I suppose the bronch is for identification of the infection or maybe to definitely rule out lung cancer, though he said it was not. I am so glad I was directed to this site, as you all made me feel better about facing the procedure tomorrow. Again, thank you!

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Replies to "Thank you so much for all your responses and you have definitely eased my anxiety going..."

@Induh66 I'm Nan, not on here a whole lot but I do read everything and I wanted to let you know I had a bronchoscopy three years ago when I was first diagnosed with bronchiectasis and MAC and it was nothing. And I'm actually going in two days from now for another one and I know this sounds weird but I'm glad for it. I got the flu very bad last year and have now had a cough that resulted from it and has lasted a year so my doctor wants to go down there and take a look to see if he can find anything. I've been testing negative for MAC on the last two sputum tests but I think he wants to go a little deeper.