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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@sueinmn

Hi Laura, You have a number of questions that only your doc can answer. First, what is his/her experience treating MAC and/or bronchiectasis? Second, was sensitivity testing done on you specimin to determine which antibiotics to use? Third, why did the doctor omit rifampin from the regime? (May be due to other health concerns you have) Fourth, why the every day dosage regime as opposed to the 3 times weekly protocol?
Some questions for you: When were you diagnosed with bronch, and how was the diagnosis made? What symptoms were you experiencing that led to the bronchoscopy? How long was the interval from the bronchoscopy to the beginning of treatment? What other treatments have been prescribed for the bronchiectasis (nebs, inhalers, Acapella or other therapies to loosen mucus...)?

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Replies to "Hi Laura, You have a number of questions that only your doc can answer. First, what..."

Hi Sue... a little background on me. I am 34 in the military. Deployed 3 times to Iraq once to Afghanistan. Most likely got the broncheastasis from the burn pits as I am otherwise very healthy never smoked. Last 2-1/2 years I been coughing small amounts of blood so I thought I should finally tell the doc. They did chest X-ray and saw some abnormalities. Followed up by ct and found bilateral scarring on the lungs and multiple modules and cavities. They biopsied the suspicious nodule and diagnosed with MAC lung disease. My pulmonary doctor doesn’t seem to be very knowledgeable and referred me to infectious medicine doctor who I haven’t met with yet due to referral process. I’m trying to get second opinion from a different pulmonologist on everything. I’ve had no mention of treatment for the broncheastasis. My condition is getting worse by the day and my lungs feel like they are on fire. I’ve called twice asking about the medication prescribed with no answer. It is really disappointing. For now I am taking the ethambutol and arythromycin until I can get more answers. I just feel like time is not on my side and this isn’t doing what it needs to do to treat it. Thank you for the reply.