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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@windwalker

@cindyrue Hi Cindy. I know the frustration that you feel from not getting the treatment and support that you need right now. I have been in your shoes.There are other treatment options out there besides the Big 3 antibiotics. I hate calling them the Big 3 and want to find another name for that combo because they really aren't that powerful according to my doctor at Mayo Clinic. You can click on my photo icon and my bio will pop up and you can read how I was treated, and there are new inhalable antibiotics now available too. There is a wealth of information in our past conversations and on the Discussion Board located on the main Mac & Bronchiectasis group page. You must be your own best health advocate. Learn all that you can about this disease; not only on this site, but others like NJH.org, NIH.gov, NTMinfo.org etc. If you are too tired, upset, or sick to do this legwork, I understand. Feel free to pick my brain. I may not know the answers, but I can help you to try to find them. Hang in there, keep looking for what will make you well again. That goes for mental health also. Losing your child is a tough one, no words of comfort can fill that void. Some say counceling may teach you some coping skills to deal with the grief, I don't know. My daughter just lost her closest friend to suicide a few weeks back and I spent days listening to her cry and howl like a wild animal in grief. The pain of loss was unbearable. It was heart-breaking. I put her into counceling the next week and it is helping her. Stress and depression can cause weakness in your immune system, and then illness ensues; so please take care of yourself.

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Replies to "@cindyrue Hi Cindy. I know the frustration that you feel from not getting the treatment and..."

Thank you, Will be checking more. i know my immune system was compromised. I have started taking bone broth capsules. will see if that helps. I have had counseling with a biblical counselor and it helped me tremendously. I will go to my grave missing my beautiful daughter, but I know living here is different now. I want to help others, but i want to me well again. I am looking to find another lung doctor.