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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@windwalker

@ann0616 Hi Ann. Please don't freak out just yet. The report said 'the constellation of nodules CAN be seen in A patient with mai.' Meaning it is a possibility. It didn't say 'this patient' has it. Many of us, including myself have had nodules in the lungs, but not diagnosed with mai. Wait for the test results to come back. Wisconsin is one of the states that has the highest incidence of mac in our country. Have you read how to make changes at your home like raising the temperature on your hot water tank? The list of changes can help minimize the amount of mac you are exposed to at home. Your water pipes are the likely culprit. Plumbing pipes are a typical breeding ground where mac likes to colonize, especially in shower heads. The list is posted on the Discussion Board. Do you want me to go thete and retrieve it for you? Or have you already seen it?

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Replies to "@ann0616 Hi Ann. Please don't freak out just yet. The report said 'the constellation of nodules..."

@windwalker888 Hi Terri. I was very stressed at first, but have calmed down and waiting to see a doctor next week to see where to go from here. I noticed that several people that responded to me are also from Wisconsin. I did not know about water pipes. Where in the discussion can I find the list? I just assumed it was from having measles, whooping cough and being raised on a farm. I live in a home that is nearly 100 years old. Do age of pipes make a difference? Thanks so much for the info.

HI Teri. I'm not Ann but would be interested in seeing the list. Thanks, Tina